EB Research Partnership
is working to find a cure. For good.

A cure is within reach. Partner with us to find a cure for Epidermolysis Bullosa.

What is EB?

This is Michelle

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EB Stories

  • Shane’s story

    I am 18. I love Star Trek, Space and science. Though EB haunts everything I do, I inspire to become an aerospace engineer or an astrophysicist.

  • Michael’s story

    In ten years we have still not been desensitized to the screams of pain that happen daily as a result of EB.

  • Jackson’s story

    No child should have to worry that if he falls, his palms will become giant blisters filled with blood.

  • Jennifer’s Story

    I learned to be creative since I couldn’t be athletic. I used my mind, which has never been affected by EB.

  • Ryan’s Story

    We don’t let people tell us how to live life with a chronic illness, and WE as a family do not let EB define us.