Strap on your spin shoes and join us for a charity ride at Cyc’s brand new Upper East Side location!
Sunday, April 30, 2017
Cyc UES | 1231 3rd Avenue (btw. 71st and 72nd)
$50 Registration includes:
All proceeds from this event will benefit the EB Research Partnership which is dedicated to funding research for Epidermolysis Bullosa (EB), a group of life-threatening genetic skin disorders.
Reserve your Bike here.
Come Do It Your Way: Join us on Thursday, May 11th for a evening of cards and classic cocktails at the august University Club. Find your inner Rat Pack-era highroller, grab a martini and secure your seat at this limited capacity event. Starting with a generous bankroll and multiple opportunities for Re-Buys and Add-ons, you can become Chairman of the Board and win a generous Cash Prize. Don’t forget to bring your good luck charm to the party! We will be serving appetizers, cocktails, dinner and dessert.
On the first Sunday in May, 32,000 cyclists of all skill levels come from around the world to roll through every borough of New York City on streets totally free of cars. For one day, the roads are yours, the bridges are yours, the City is yours—there’s no better way to experience the Big Apple. Produced in conjunction with the City of New York, the TD Five Boro Bike Tour Presented by REI is the largest charitable bike ride in the U.S., with proceeds funding our free bike education programs. Last year alone, we taught bike skills to more than 17,000 kids and adults. When you ride with Bike New York, you’re helping us in our mission to empower more New Yorkers to grab life by the handlebars.
On Friday, December 2nd, EB Research Partnership Co-Founders Eddie and Jill Vedder attended the NASCAR Sprint Series Awards Banquet in Las Vegas Friday to pay tribute and surprise their friend Tony Stewart, the race car driver who recently announced his retirement. Both the Vedders and Tony Stewart were surprised though when Hendrick Motorsports owner Rick Hendricks took the podium to reveal that the NASCAR community had made a donation of $1.8 million on behalf of Stewart to EB Research Partnership.
We at EB Research Partnership are beyond thrilled- and so grateful to be a part of this generous gesture to honor Tony. If you’d like to donate to this campaign, visit us at ebresearch.org/smoke.
If you’d like to read more about this event, you can check out one of the recent articles here.
In Mid-October, we held our second Community Council of the year, a series of podcasts about current clinical trials. Leading EB researchers discussed the clinical trials mentioned above in video podcasts posted on this page.
The researchers will be answering questions and we will repost them later next week in honor of EB Awareness Week. Please send your questions to us by email (email@example.com) by 9 a.m. EST on Monday, October 24th or post them to our Facebook page. The researchers will be answering questions about the studies, and regret they cannot address personal medical questions.
Our Gold Sponsor:
On Tuesday, May 17, 2016 we conducted our bi-annual Community Council webinar “Beyond Blisters: Managing Distress in EB.” We were lucky to share space with experienced individuals, who described some tactical ways to recognize and deal with stress, anxiety and not being afraid to ask for help. Listen to the recording and view the presentation Community Council May 5.17.2016.
Our Community Council Program was sponsored by:
We had so much fun exploring the Aquarium and listening to some amazing speakers at our annual Night of Discovery: Lighting a Path Towards a Cure event in Long Beach, CA. Thank you to all who came out to support our cause and participated in the exciting auction. We raised over $53,000 with 200 people in attendance.
This event was powered by our Title Sponsor,