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“Butterfly Children” on Good Day Street Talk

“Butterfly Children” on Good Day Street Talk

With skin as fragile as a butterfly wing, everyday tasks can be torture for “Butterfly Children.” John Hudson Dilgen,12, and his mom Faye share their personal story. Alexander Silver, whose son Jackson has EB, discusses efforts to find a cure.

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How the Butterfly Moms Spend Their Summer Vacation

How the Butterfly Moms Spend Their Summer Vacation

Butterflies are everywhere. Some of us wear them subtly on charms around our necks or dangling from our ears. Others wear t-shirts or sunglasses emblazoned with them. And then there are those who wear their butterflies more permanently, tattooing their skin with these winged creatures. No, we are not lepidopterists (scientists who study butterflies) or

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The Gift of a ‘Rare’ Child

The Gift of a ‘Rare’ Child

I never appreciated Father’s Day until I became a father. And this June 15th, I will witness my son endure an arduous and painful bandage change, a process that I have witnessed almost every day for almost 7 years, including every Father’s Day. My name is Alex Silver. My older child — Jackson — was

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