Press

KNX-AM Radio: Hero of the Week

KNX-AM Radio: Hero of the Week

April 9, 2015: Ali Ringgold, started an art blog in honor of her sister, Bella, who passed away from EB in 2010. In this radio interview, Ali and her Dad, Tim, share their touching story of how and why they are using the blog to raise awareness and money for EB Research. Check out Ali’s

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Island Teen running 2015 NYC Half

Island Teen running 2015 NYC Half

On Sunday, March 15th, Manhattan will be inundated with thousands of runners taking part in the NYC Half Marathon. For one Staten Islander, the Marathon represents much more than just a race. Kalila Dilgen is running for her younger brother, John Hudson, who was diagnosed with an extremely rare genetic disorder known as EB (epidermolysis

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OC Students Sell Lemonade to Raise Money, Awareness In Honor of Peer

OC Students Sell Lemonade to Raise Money, Awareness In Honor of Peer

January 19, 2015: IRVINE (CBSLA.com) — Dozens of Orange County elementary school students Monday raised money and awareness for a rare skin disease one of their peer’s suffers from. Up to 80 students from Springbrook Elementary School in Irvine sold lemonade at four stands from 9:30 to 2 p.m. in honor of Mikey Fullmer, a 3rd grader,

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